About the Project
The Hellenic Thalassaemia Association was founded in 1975 in Thessaloniki in order to protect and defend the rights of people suffering from Thalassaemia and Sickle Cell Disease. It fights for public and free care for sufferers and implements actions and initiatives aimed at improving the health services provided, their education on the disease, their everyday life and their social integration. It is a member of the International Thalassaemia Federation (TIF), the National Confederation of People with Disabilities (ESAMEA) and the Hellenic Thalassaemia Federation (HONF).
On April 19-21, 2024, it organizes the annual Thalassaemia and Sickle Cell Disease Awareness – Educational Event, which will be attended by sufferers, doctors, nurses and other health professionals from all over the country. An institutional event of national scope, which takes place every year with the scientific support of the doctors of the Thalassaemia and Sickle Cell Disease Units of Thessaloniki.
This year’s event will last 3 days, on 19-21 April 2024 and speakers from all over Greece and abroad have been invited to present and discuss all the new therapeutic developments that promise to improve the quality of life of patients suffering from Thalassaemia or Sickle Cell Disease, as well as a definitive cure. Gene therapy and other therapies announced or approved in the last half of 2023 have given hope to the patient community for the future. The event program will include topics on new developments, including:
- clinical trials in progress
- new advanced therapies
- gene therapy
but also specific endocrine issues of concern to patients, such as:
- growth hormone deficiency, o growth hormone deficiency, o diabetes, o diabetes mellitus
- chronic pain
The event will be held in collaboration with the Thalassaemia and Sickle Cell Disease Units of the Thessaloniki Hospitals and under the auspices of the International Thalassaemia Federation.
For more information, visit www.estha.gr.